home
| archives
| bio | stories
| poetry |
links | guestbook
| message board April 2011
The more crazy senile she gets the more exhausted I get. Wheeeee!!! Posted at 10:17 AM
Why does every doctor reschedule appointments so often? We're dealing with probably around 70% of all appointments being rescheduled once and sometimes even a second time. It's been this way for the past few years, but prior to that I never heard of such a problem. Now it's omnipresent. Look, people - I have enough to deal with and try to plan for without your new vacation or new boat seeming more important than my grandma. If you want our money then at least show up when it was first arranged. If you can't do that then retire. This poor treatment is ridiculous. Whatever happened to treating the customer well? Posted at 11:10 AM
Hundreds of tornados hit the South last night killing hundreds of people. I learned about this just before I went to bed, and then, when I awoke in the middle of the night to the sounds of a fury of wind whipping the house I had to wonder if there would be twisters here as well. As it turns out there is no evidence of tornado activity nearby, and I haven't even seen any fallen tree limbs up or down the street, but I had quite a bit less sleep than usual - not from worrying about possible tornados but simply from the noise of the howling and beating wind, hour after hour. So I'm tired, and while the fury and speed of the wind have diminished, it's still very active outside with strong gusts. It should make for an interesting day. Posted at 9:29 AM
Today I'm finally able to introduce a wonderful development. A short time ago I was contacted by a student named Derek from South Central College in Minnesota. He was interested in using one of my short stories for a short film project for one of his classes, and he wanted my permission to go ahead. I was flattered and intrigued and told Derek to go ahead. Over the next couple of months we e.mailed back and forth a bit. Derek needed more length for his film, and we both put forth ideas to lengthen but also add to the story. Yesterday I received word from Derek that all was complete along with a link to the YouTube video. There are notable differences from my original story, but the film holds true to the spirit of the story throughout. I think it's a great production, and it's a very impressive accomplishment for a team that had never done any film work before. But don't take my word for it; see for yourself. Here is a poster for the film, and here is the YouTube link as well as a link for a video file. Posted at 11:22 AM
... and almost as quickly as they came they're gone again. My sister, nephew, and niece, during a few hours shopping at the local Borders bookstore, cam back with a DVD of Young Frankenstein, and we all sat down to watch it last night. I have seen the movie a number of times and could quote lines word for word for much of the film. My nephew and niece had never seen it but had listened a number of times to the soundtrack of the Broadway musical, so they had a good idea what to expect - but they were still clearly pleasantly surprised by the movie. It is a classic example of how a set of great actors can make a great story even better, even funnier, and even more endearing. It was great to watch my nephew and niece enjoy the film so much. We were laughing together, and that gave me some of that feeling of bonding that I had felt was so lacking before that. And now they're on their way back to home in Maryland, and I won't likely see any of them 'til mid-August - but that's not much different than any other year. It was a nice visit, but I do still feel empty and alone even after making a connection. Mostly it's just the depression crushing me down, I suppose, but it feels more isolating than normal. There's nothing to be done, though, so I'll just keep muddling through ... certainly at least until mid-August. Posted at 1:29 PAM
Surely my head has to explode if it has this much built up pressure. <<<<BOOOM>>>> Posted at 2:05 PM
My sister, nephew, and niece have arrived for Easter weekend. It feels more like they're here out of obligation than desire. I feel like there's no connection at all, and I'd love to be a part of their lives, but that just doesn't seem so on their part. More fun, just as always. Posted at 10:47 AM
I could really use a lucky break ... or a nap. Either would be a miracle. Posted at 12:38 PM
Quick! Hide the razors! Posted at 9:28 AM
It seems hard to believe someone with so much zest and vibrancy could be dead. Rest well, Lis. You gave us many wonderful times.
Posted at 11:34 AM
The crazy aspect of the senility is getting stronger and more prevalent, and I do not like it - not at all. Posted at 9:35 AM
There is nothing so profound as the inevitability of the past. Posted at 11:19 AM
I find it hard to believe that at this point in time there is anything better coming from the representative government we have under the Republicans and Democrats than what we would have in total anarchy under nobody. Yes, the situation would be tremendously different, but I don't see how things would be any worse. The strong and well-armed would ave a higher balance of power than others, but that's comparable to the rich over everybody else - no change. There would be no police or fire department, but government cuts are whittling those services to nothing and many governments are planning to charge for any and all services from those departments - no net change. The free market would rule with no oversight which is what the Republicans are making happen and the Democrats aren't fighting against - leaving no change. There would be no Social Security, Medicare, or Medicaid, but there would be no taxation taking 30-50% of your earnings (between income and sales taxes) - no change. I vote for anarchy. At least in that situation each person would have more control of their own destiny. As it is now, you vote for people who lied to get your vote, they don't do what they promised and you expected them to do, and you get fucked by them and their opponents because nobody at all really gives a damn about you. So fuck them all. Who needs a government if all it does is fuck you over? Posted at 10:09 AM
I miss my time in the Arts Center. I need that quiet simplicity to heal myself ... and yet I don't believe circumstances will flow such that I'd ever be able to live there again. Posted at 10:16 AM
Let's hurry up toward the end of that Myan calendar. Posted at 10:44 AM
It's hard to believe there was ever a time that I was happy. How can life be so horribly painful and pointless and unredeemed when I know that happiness did once exist? And how can I keep going with no hope to ever know that happiness again? Posted at 10:07 AM
Today is a massive improvement from yesterday. My grandma is nowhere near back to where she was even three days ago, but she is walking now, and that's huge. How long this will last I don't know, but I'll certainly enjoy it while I can. Posted at 11:18 AM
It's hard to believe it can get worse, but it keeps doing so. Yesterday was worse than the day before, and today has reached new lows. I have minimized the time my grandma needs to stand and walk to only about two minutes and a half dozen steps each time she goes to the bathroom, and it initially looked like that might work. She would do just that much (with positive coaxing) and not yet let the fear from her anxiety overcome her. Now (at least if this morning is any example) she will stand fine, walk a few steps fine, and then let the fear overcome her and immediately give up, letting her legs buckle underneath her and refusing to straighten her legs. This is completely in her mind and something she can overcome, but she just won't try, and that is the core problem. In a different setting I could lift her from bed to her wheelchair, from her wheelchair to her recliner, from her wheelchair to the toilet seat, and back again from each of those seats. And I could care for her in every other necessary way either while she was lying in bed or while she was sitting in a chair. That setting is not this house, however. I could do just about everything, but picking her up and putting her on the toilet seat just won't work. The bathroom is too small and the pieces in the bathroom too close together to make this work. In the strictest sense I think I could get in the bathroom, pull the wheelchair in from the hall with me and up to the door (which is as far as it would go - it's too wide to go further), then lift my grandma out of the chair from under her arms and set her down. If it were a life-sized doll or an unresponsive person for her weight I could do it without too much problem. Unfortunately my grandmother flails around and tries to grab at anything in reach when she's lifted up, regardless of how much you've prepared her or how quickly you manage it. If she doesn't grab the edge of the counter or the towel rack or a cupboard handle or the handles on the raised toilet seat (any of which would stop her and make it impossible to move her further and set her down without uprising the hand free - and since I'd need both hands to lift her, that becomes difficult since I haven't had that third limb grafted on yet) - and if she didn't grab any of those items she could still very likely bang her arms or hands into something and hurt herself. I suppose I could use a belt and strap her arms to her sides for the brief duration of the lift (this has just occurred to me) but it seems wrong somehow to do that, even though it would be for her own good. I don't know. I'm struggling to come up with ideas for how t make this work. The bathroom is the only problem right now. That's not saying that this new turn of events will be easy - far from it - but I still believe I could manage and keep her healthy and happy - so long as I can figure out how to make a working solution for taking her to the toilet. Ah the fun of this. How you all must envy me. Posted at 10:12 AM
We may be reaching the end here. My grandma is at the point, it seems, of refusing to even try to walk because she has let fear grip her so strongly. This may just be a bump in the road and tomorrow will be better, but I don't think so. I believe this is the next progression in her continuing downward spiral. Unfortunately, with the small space and configuration in the bathroom, I don't know how I can make things work if she won't stand up and walk at least a few steps to get in position to sit on the toilet. It's just not in a position such that I can lift her and set her down. It's just too tight. While I could try a bedside toilet stand - and I may - I have concerns about whether she will stay seated on such a stand or fall off to one side (she lists like the Titanic) or if she scoot it around out of place while I was trying to lift her and set her on it (because she generally panics and flails her arms every which way and grabs stuff in the process, and the nearest grabbable thing would be the toilet stand). If I can't get her on and off the toilet then there are very few workable solutions, and those solutions are just things I can try but don't have a lot of hope for as real options. The bottom line is that a nursing home may be the only solution, no matter how much I oppose that. There's sadly only so much I can do, and she's pushed me to the limits and now possibly beyond. I don't know what to expect from here on. Posted at 2:08 PM
Truth, compassion, love - these things should come to all of us most easily ... and yet for most they are a struggle to produce or they are things to manipulate. The natural order would be where they come naturally and all is peaceful and pleasant and comforting. But for some reason this is not the case. For some reason mankind twists thee things beyond recognition to make the world of hatred and horror and dishonor that surrounds us every day. Why? Posted at 10:28 AM
The shoe thing, the shit everywhere, the anxiety-based fear, the senility, the determination not to even try to do important things like stand up, the complete lack of any short-term memory - one or two of these things at once are enough, and I've been able to make things work despite the difficulties - but ALL of these things at once is more than I can stand. Physically I can still manage (surprisingly), but mentally and emotionally I've passed my limit. Even a single day of this would be a miserable curse, but a full week now has left me physically tired and mentally and emotionally unstable. This sort of hell can't go on much longer or I'll lose my mind. This whole endeavor is becoming a curse, no matter how good my intentions or the purpose. It's simply become a miserable ordeal, and that has no winning points, no matter how you look at it. Posted at 10:54 AM
The depression is strong in this one. Posted at 11:29 AM
Happy belated birthday to my wonderful friend Chris, currently in Florida. I love you and miss you, buddy. Have fun! Posted at 10:34 AM
Honestly, the man could have been talking to my grandma and her dementia-inspired anxiety. The fear is crippling her and it's all just a quirk of her brain that's been present since the stroke. It's not based on any real thing(s) to be feared, but it's making her afraid to stand up or, once up and standing, to move her feet and walk. She's like a deer in the headlights, and this fear is overwhelming any aspect of how strong her legs still are or any realization of how well she does still actually stand and walk - for her age or for anyone even twenty years younger. It's frustrating to see her basically losing the ability to walk - not because she's too weak or unsteady but because of a trick of the mind that she has proven she can ignore (she moves fast as can be first thing in the morning when she needs to go to the bathroom and thinks about that rather than focusing on the fear). She just gives into the fear, and that upsets me even more than that she's having these problems. I hate to see her giving up. That's not the kind of woman she is. Posted at 10:56 AM
Tired, headachy, hungry, stomach-achy, weak, worn ... When does it end? Posted at 11:10 AM
If they're not your shoes, grandma, then whose are they? Posted at 11:42 AM
Why does this migraine have to be so unrelenting, and why does it have to be so much more severe these past couple days? Posted at 9:57 AM
My mom finished a five-day visit and left before I got up this morning. Her help taking care of my grandma made things a bit easier this past week, but with the flat tire and various other errands and projects that needed to be done, I had next to no real free time left around the things I still had to do taking care of my grandma (stuff my mom can't manage). So I had a break in a way - a break from the repetitive routine of caring for my grandma, a break from my grandma's senility, and a break from prompting my grandma to stand up straight every other step - and that was nice. I didn't have a proper break, during which I could relax or even get more sleep - and that's a shame because I need that kind of a break - but all in all it was better than nothing ... which is what I unusually get. Now my mom won't be back for probably another two months, so the burden is fully back on my shoulders. I've managed to keep it together so far. Hopefully I'll still be able to manage by myself and keep sane despite everything. Posted at 10:31 AM
Word. Posted at 11:06 AM
Journal, by Paul Cales, © April 2011
|